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Epilepsy and Incontinence

A poll to find out how epilepsy affects you in regard to incontinence.
What is your Gender
Male
Female
What is your age
Less then 5 years old (please ask a parent or guardian for permission to fill this poll in, and for help with answering the questions or leave)
6 - 7
7 - 8
8 - 9
9 - 10
10 - 11
11 - 12
12 - 13
13 - 15
15 - 20
20 - 25
25 - 30
30 - 40
40 - 45
45 - 50
50 - 60
Older Please specify
Do not wish to say
Do you have Epilepsy
Yes
No (Please leave)
No but I am answering for a child or disabled person with Epilepsy
What type of Epilepsy do you have
Absence
Peti-Mal
Partial
Myoclonic
Mytonic
Grand-Mal
Tonic Clonic
Cognitave
Sleep seizures
Frontal Lobe
A Tonic
A Clonic
A Typical Absence
Lennox Gastaut Syndrome
Rasmussen Syndrome
Psychogenic Seizures
Reflex Epilepsy
Emotional Seizures
Temporal Lobe Seizures
Complex Partial
Dravet Syndrome
Other Please Specify
Do you have any other medical condition or disability, other than epilepsy, that renders you incontinent
Yes Please specify
No
If yes does your incontinence affect you
I am not incontinent
I am only incontinent during seizures
Light leakage
Moderate Leakage
Heavy Leakage
Severe Leakage
Total leakage, (no control)
Does your incontinence affect your bladder or your bowel.
Bladder
Bowel
Both
Do you use any form of protection
Small Pads
Medium sized pads
Large Pads
Water proof mattress protector
Chux
Adult Diapers
Youth Diapers
Childrens Diapers
No
Are you able to change yourself after an accident
Yes
Yes but need help
No I need to be changed by someone else
If no, who changes you
Mother
Father
Brother
Sistor
Friend
Trusted Adult
Nurse
Support worker
School Nurse
Carer
Teacher
Therapist
Other Please Specify
I can change myself
If you are incontinent how does having a seizure affect your incontinence
Makes it worse
Stops me having an accident
Guarantees I will have an accident
Don't know
If you are not incontinent, does having a seizure make yo loose bladder or bowel controal
Yes Bladder Controal
Yes Bowel Controal
Yes Both
No
How often do you loose control of your Bladder or Bowel during a seizure
every day
several times a week
once or twice a month
three or four times a year
every time I have a seizure
I don't
How often do you have a Seizure
over 100 a day
50 - 100 a day
1 - 50 a day
50 - 100 a week
1 - 50 a week
2 - 3 a month
Don't know
Other Please Specify
If you loose Bladder or Bowel control during a seizure, do you use any kind of protection
small pads
medium sized pads
large sized pads
waterproof mattress protector
chux's
Adult Diapers
Youth Diapers
Childrens Diapers
Other Please Specify
No
How long do your seizures last
Constantly having seizures 24/7
More than an hour Please Specify
Half an Hour
20 Miniutes
15 miniutes
10 miniutes
5 miniutes
Do you have one seizure followed by another
Yes
No
Don't Know
If you loose bladder or bowel control during a seizure and use protection, are you able to change yourself after the seizure ends.
Yes
Yes but I need help
No I need to be changed by someone else
If no who changes you
Mother
Father
Brother
Sistor
Nurse
Paramedic
Support Worker
Carer
Theripist
Doctor
School Nurse
Teacher
Friend
Trusted Adult
If you wear diapers because of your epilepsy, what type do you use
Tenna
Attends
Lille
Molicare
ComiDry
Tranquility
Store own brand (adult or youth diaper)
Good nites
Underjams
Prevail
Luvs
Pampers
Huggies
Store own brand (children's diaper)
If you wear Diapers for your epilepsy, please describe how people react when they see you having a seizure and notice you wearing a diaper. If you don't wear diapers for epilepsy or do not know how people react to you in this situation, just type N/A
This has happened to me many times in the past. Have you ever had a seizure and come around from it to find that you are in hospital, lying in bed with the rails up and wearing a wet and soiled diaper.
Yes
No
What is your opinion of hospital staff you leave unconscious patients in wet and soiled diapers after a seizure. Do you think hospital staff should change patients before they come around from a seizure or after. Do you think the majority of patients who require an incontinence brief for epilepsy, would have the capability to change themselves after a seizure. Please make your answers to the three parts of this question brief and to the point. No more then three sentences per section.
What is the most embarrassing situation you have been in regarding epilepsy and incontinence
Do you have any warning when you are going to have a seizure
Yes
No
If yes please describe how you know when you are going to have a seizure and what you do. If no just type N/A
When you have a seizure are you incontinent
Before the seizure starts
During the Seizure
After the Seizure
(A rather dramatic question but I am curious) How do you feel about having your diaper changed and bottom wiped by someone else after soiling yourself during a seizure. Please describe how this makes you feel. I personally hate this.
Aside from incontinence, what other symptoms do you have either after a seizure or as a result of your epilepsy. If you do not wish to say, just type N/A
This poll was created on 2016-07-02 12:41:39 by please delete me